Hi again Deb. Same surgeon. He's a lovely guy. Gave my husband his personal cell phone number and every time I wind up back in hospital he comes to see me.
I was diagnosed in the September and had an NG tube by November which remained until August the following year. The tumor was a stage 4. Rukshan didn't want any other tubes in my abdomen as he wanted to keep the surgical field clear of scar tissue until the surgery. It was problematic but necessary. I also had a heart attack because of the 5FU chemo which caused more problems .
I was kept fed with a ensure pump going all night every night then other products by day.
I wound up doing 3 months rehab out at Burwood where they put me on a drug called mirtazipine. It's an antidepressant which helped me sleep but it also has an appetite stimulator. I'm not taking it any longer but I I think it helped. I force myself to drink fluids but still wind up being admitted every now and then for rehydrating.
Sue