@krisingle1 Im not trying to be sarcastic but I coordinate my own care. I keep extensive documentation and call each provider as needed. From an Insurance point of view I ask every provider to send their notes to my PCP and they maintain the electronic file. I follow up with my PCP to make sure they get the notes as needed.

Hope this helps!

@krisingle1
I know just what you mean! I find that each specialty will not discuss me as a person, just as symptoms; so I keep appointments 3 or 4 times a year with my PcP. My rheumatologist is primary. However I was feeling short of breath, like when I have pneumonia and realized not one provider had listened to my heart and lungs in ages! When I asked him to, he disappeared for awhile trying to find a stethoscope! After ages without a good internist, I know what you mean because she looks at tests, diagnostic and preventative, orders labs. I have all the others forward results to her. It might work for some people to do this for themselves. But I'm 67 and have been living with chronic disabling illness since I was 31. It is complicated! And I have energy limitations. I was an RN. I used to advocate for people in their homes. Believe me, not everyone is able to manage their own case! Good luck to you. I hope you reply if you can find a way to get that help.