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@56tburd

You are correct there must be a better way to treat this it is barbaric. I have started just trying to manage each day it's too disappointing to plan, hope and fail. Just joining this support group was a huge step for me. I never expected to deal with mouth cancer being a non-smoker and this has been a massive shock. I miss food so much and just hate losing the ability to taste and eat. I do not adjust to change well and this has certainly shocked my world.

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Replies to "@56tburd You are correct there must be a better way to treat this it is barbaric...."

@dragonfire I'm sorry you are struggling with the side effects of the treatment. I am 5 years out and am still impacted by a few of side effects. Over this time, I have realized that while they are a negative influence on my life, the alternative was dying and not getting to meet my grandchildren, spend wonderful years in retirement with my wife, enjoy time with friends golfing and so many more things. Try to keep focused on the good that these treatments have allowed. Over time, the impacts of side effects will lessen, and if they don't, you'll get better at dealing with them.