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What's your experience wtih Brinsupr (brensocatib)?
MAC & Bronchiectasis | Last Active: 10 hours ago | Replies (643)Comment receiving replies
@jillcrawford @scoop I am totally beside myself and all can probably tell by how many times I have asked questions about our mucus and mucus plugs etc.
I have been bringing up mucus plugs with the morning and evening therapy...saline/AC/huff cougning. I clear all into a clear solo cup that I have a least 20 or more mucus plugs each session of late. I wake up each night several times and have to take time to clear the mucus out before going back to sleep.
I also have to clear my throat all day long in between therapy sessions because of this annoying feeling of sputum/phlegm/mucus, or whatever it is. This sputum/phlegm/mucus, or what ever it is, seems to never stop coming up to my throat...and I have learned to suck it up and out. It is especially worse after I eat.
Questions: Scoop, do you have any of the above concerns as I?
jillcrawford, Do you have any of the above concerns as I? You did mention mucus plugs.
Hope you feel comfortable with my questions.
Have either of you heard or know if the worse the inflammation becomes the mucus plugs increase?
I have no shortness of breath, including when I do my walking exercise. Overall I feel well, but at times find myself losing energy towards the middle of the day. I know at 83 I have to expect a bit of less energy level but I think it is somewhat related to the energy given to doing the total therapy that goes along with nebulizing????
I see the pulmonologist the end of the month and have taken a picture of the solo cup with all that ends up in it to show him........I am going to ask for the Brinsupri.
Barbara
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@blm1007blm1007 Sounds like it's been a long road with the annoying throat mucus and plugs! I will try my best to answer your questions. First of all, when I think of a mucus plug, I think of a hardened secretion, almost like what might come out of the nose. Hardened, I believe, because it's been "stuck" in one of the airway tubes for sometime and dries out, thus the increased density/hardness. At one point, that mucus plug, was glob like mucus but was not removed so it turned into a mucus plug.
Although small mucus plugs (as I describe above) come up in me, infrequently, (size approximately 1/4 cm, give or take) the usual secretions (with airway clearance) are more like loose sticky globs. Yes, they can appear roundish but if I were to squish them, they would squish easily. Whereas, mucus plugs although appearing roundish, do not depress as easily as the glob. They are more discrete unto themselves than the spreading globs.
Please refresh my memory what your last sputum revealed and if you have tried long acting 1200mg mucinex.