@djchambers
I'm so sorry you have to deal with a reoccurrance. I know how upsetting that is.
The best way to get an appointment with a Mayo net specialist is to request it through their online form. Be sure to identify the net specialist at whichever Mayo location you want to visit and ask for him or her by name.
When we did that, we heard back within a couple of days and got an appointment fairly quickly in Phoenix. You should be able to get their specialist info by location from the Mayo website. The specialist will go over the many different treatment options and will choose the best for your situation.
My husband sees the specialist at the Phoenix campus. He has medicare and a supplemental plan G and drug plan through United Healthcare/AARP. We've never had any coverage or cost issues. Taje advantage of open enrollment and fund the best supplemental plan and drug plan for you. Stay away from Adbantage plans. They are far too restrictive for this disease. Some drugs are covered under Part B such as the Captem protocol and lanreotide injections. Others are covered under drug plans. Some examples of drug optikns are are everolimus, sutent, cabozantinib, etc.
Mayo is excellent in helping to find resources if cost does become an issue. (They got the manufacturer of s very expensive drug to provide it at no cost)
Take a deep breath. There are lots of good options and you'll be in great hands at Mayo

@djchambers Here is the link to initiate an appointment with Mayo Clinic:
http://mayocl.in/1mtmR63
As a returning patient, I hope some of the process is a little easier for you. Also, the most up to date phone numbers are listed.

You have had some great input from others. As you continue your journey, please keep engaging the folks here. Treatment isn't a cookie cutter. Our bodies are all different, so the treatment that works for us is all different. We can share what worked for us individually. We also can give you a shoulder to cry on. We all have needed ones ourselves. ok?