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Oral Lichen Planus, how are you coping?
Autoimmune Diseases | Last Active: 2 days ago | Replies (12)Comment receiving replies
@zinnia55 Welcome to Mayo Clinic Connect! This disease/headache/problem is pretty common here in Connect.. Have you received any treatment or referrals to specialists like a rheumatologist? They are the ones who mainly treat this disease. Oral surgeons and dermatologists also get involved. You’ll find out more as the members get into this discussion. I have posted a link to all of the discussions about OLP. You can read through these and get ideas of how other members cope.
https://connect.mayoclinic.org/group/autoimmune-diseases/
Sure hope this will get you started!
Replies to "@zinnia55 Welcome to Mayo Clinic Connect! This disease/headache/problem is pretty common here in Connect.. Have you..."
@becsbuddy Hi! Thank you for the response, I have been to a dentist, had a biopsy by an oral surgeon, prescribed steroids by ENT doctor and told by immunology they do not treat, I have not seen a rheumatologist but I called one and they said they had no idea but they would see me. I just spoke to a peridontist today who said they do treat it and can see me in Jamuary 2026. I am going to make that appointment but its been a real struggle so far. Its amazing to me that I am having such a hard time finding help. I have been following some of the links and you are right the members information on this site has been so helpful.
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@becsbuddy @zinnia55
Gastro also treats EoE, OLP, ELP etc. In fact, at Mayo I was diagnosed by an EGD for EoE and ELP. He wants me to follow up after each EGD to treat the strictures caused by ELP and to be seen by a dermatologist. My dentists and perio are also keeping an eye on things. Diet has changed alot - for the better. Good luck!