Unexplained muscle weakness

Posted by iillitad53 @iillitad53, Oct 18 5:42pm

Hi! I’m a 23 year old female and I have been going through a lot of symptoms for about 6 months now. It started fatigue and heart palpitations/fast heart rate and high blood pressure and weakness/numbness in the arms. I went through tests and didn’t have any heart issues just a fast heart rate. I started medication for that and it helped. I went to neurologist because my pcp suggested it. I went through tests and a mri. Only things that was flagged on my blood test was a positive ANA screening and Vitamin D deficiency. By time I got those test back the weakness had spread to other parts of my body like my legs and causing random muscles to twitch. I had been dealing with mobility issues as well. My neurologist had recommended that I see a rheumatologist. I was also given methylpredinose like a few weeks before my blood test. I got additional blood test and an MRI of only right femur. My MRI has come back mostly normal with trace bilateral knee joint effusions. I only had one thing positive in my blood test and that was C1na antibody in myositis panel. These symptoms are making it hard for me to do everyday activities. I just want some answers and if anyone could give me some tips.

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iillitad53 | @iillitad53 | Oct 18 6:10pm

***cn-1a AB antibody

laura1970 | @laura1970 | Oct 19 2:21pm

Did the prednisone help?

stanfojc | @stanfojc | Oct 19 2:38pm

Look up myasthenia gravis. It’s an autoimmune disease that causes muscle weakness. The nerves don’t communicate with the muscles. Muscles become very weak. There is a blood test for it. My husband got it following cancer. Neurologist should know about it. Good luck.

lorry | @lorry | Oct 19 3:46pm

Seems you’ve had all the tests, but just in case have you had your vitamin B6 level checked?
Excess causes peripheral neuropathy and tingling in the arms, muscle spasms, lethargy and weakness are all symptoms.
Terrible for someone so young to have such distress.
Good luck in finding cause and cure.

iillitad53 | @iillitad53 | Oct 19 5:09pm

In reply to @laura1970 "Did the prednisone help?" + (show)

@laura1970 I haven’t seen any effects yet. I still feel pretty much the same.

iillitad53 | @iillitad53 | Oct 19 5:10pm

In reply to @stanfojc "Look up myasthenia gravis. It’s an autoimmune disease that causes muscle weakness. The nerves don’t communicate..." + (show)

@stanfojc I got the test done at the neurologist and it was negative. She went through every single test for me she was thorough. Thank you!

iillitad53 | @iillitad53 | Oct 19 5:16pm

In reply to @lorry "Seems you’ve had all the tests, but just in case have you had your vitamin B6..." + (show)

@lorry I had most of those things checked and they within healthy range. My rheumatologist is going forward with a muscle biopsy. Thank you so much I’m really trying to get discouraged but it is very hard!