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carrie40 avatar

Anyone had Abrax removed from the Gem/Abrax combo?

Pancreatic Cancer | Last Active: Nov 16, 2025 | Replies (10)

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@carrie40
I had abraxanxe removed in late December of 2024 as I was considered cancer free after a radiation treatment on my liver that lasted about 5-6 months. In December 2023 following my USERCP dr said it looked like I had peritoneal nodules but they were too small to confirm it was cancer. My UCLA dr said we assume it is and treat as such with gem/abraxane/cis (cisplatin only until sept 2024). My city of Hope dr said peritoneal nodules were not cancer since they hadn't grown (I had been on abraxanxe). Be careful with the drs you choose - most conservative thinking are the best. City of Hope dr had me only in gem from Jan 2025 - April 2025 and that's when the peritoneal growth (no man's land exploded) with my aggressive cancer my ca19-9 jumped up to almost 14,000 from April - June. I asked for abraxane to be added back in but my city of Hope Dr refused; wanted me to go on a trial. So I left City of Hope snd went back to Hoag in Orange County. After a disastrous trial of the Naliri chemo my Hoag oncologist allowed me to retry abraxane and now my ca19-9 is at 150. I have ATM, KRAS12-D, TP53 and a peritoneal related mutation now. I wear the iced booties and mittens during my abraxane chemo. It helps decrease chance of neuropathy but by all means it will not prevent it100%. This is just my experience; it may not be yours.

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Replies to "@carrie40 I had abraxanxe removed in late December of 2024 as I was considered cancer free..."

@mnewland99
First of all, I'm so glad to hear from you as I have so appreciated your posts in the past; I hadn't seen any lately-- also hope your class reunion trip went well.
Second, this was so enlightening. I'm going to push for the return of Abrax--and like you, I have the iced booties. According to Guardant from what I can tell is that I don't have any major mutations which I think has helped me sustain life. There is no doubt we have to be our own advocates...Carrie