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Going off ADT after 3 years

Prostate Cancer | Last Active: 12 hours ago | Replies (23)

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Hi @shelby29 . I was on abiraterone, prednisone and Orgovyx (instead of Eligard) for 17 months. I'm 60. I was given a holiday off of them for 9 months (as they were taking a toll on my body), and should have stepped off of the prednisone because I had 3 months of worse aches than on ADT and needed adrenal stimulation to get my cortisol levels back to normal. Anyway, I understand that Eligard will take a little longer to wear off and for you to start feeling more your old self again. Yes, the time off was nice for me. Nice to see my muscles come back and remember what libido was again. But ED didn't improve much if at all and after 9 months my PSA was back up (from zero), so now I'm on Xtandi. I guess what I'm saying is that it's nice to get off of the meds, but it will be a temporary thing. Your PSA will rise again, you then will/should be scanned (PSMA PET-CT) and if there are no lesions found, you'll be back on a hormone treatment. At least that's how it has worked for me. Good luck!

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Replies to "Hi @shelby29 . I was on abiraterone, prednisone and Orgovyx (instead of Eligard) for 17 months...."

@stuartmpls Thank you do much for your reply...good to know.

@stuartmpls
Xtandi side effects can be a real problem for some people. Nubeqa (Darolutamide) Works very similar to Xtandi and if you are having problems with it, ask your doctor to see if you can switch. Nubeqa Doesn’t pass the blood brain barrier like Xtandi so it causes less brain fog.

I know a lot of people on Nubeqa as their main treatment, Many in their late 70s and 80s. They are very pleased with how Few side effects there are and the fact that it works with testosterone.