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Stem Cell Transplant Decision & Success
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jan 12 8:07am | Replies (72)Comment receiving replies
@janetlen. The next weeks will be busy for you as you get all your ducks in a row 🐥 You’ll most likely get educational literature…meaning you’ll learn an entirely new vocabulary and toss around words you’ve ever heard before. LOL. Those of us who have been through it are well versed in BMT-speak, so if you have any questions or concerns we can answer for you don’t hesitate.
Another encouraging tidbit for you that I learned from my transplant doctor. Besides the milestone marker of 5 years with no relapse, another pivotal moment is getting past the 22 month mark with no recurrence. Once you reach that point, statistically the odds of a relapse drop dramatically.
Good luck this week with the pre-testing!
Replies to "@janetlen. The next weeks will be busy for you as you get all your ducks in..."
Remind me when you found out your blood type!! I am having less blood drawn as i am stabilizing.
I had an interview with the online site i was helping on for genetics patients. Fun. The are taking the results to see what direction they will go. I suggested if they have not, go to Mayo Clinic Connect to see what a fabulous resource this site is. They are giving me a $25.00 gift card for participating.
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@loribmt
I had my 2 month follow up. As they write in all your follow-ups, I am day 555 as of Friday. Day 556 after transplant today. I saw the Dr as the nurse is on vacation. I need to get pictures of my hair to show her in January. She was saying in August she was obsessed with my hair. The Dr moved me to every 3 months for now. All my bllod numbers are in range.
BUT, I have been having yellow pee. Yes, at work, not enough water for a number of days. My number was 115. That was my bad number and all my responsibility. As he told me in my first year after sending me for hydration 3 times at least, I am killing my kidneys. I thought how often I had yellow pee through the decades and never thought why it was happening. My kidneys and body need water. This is how a person who has never been sick might end up with a severe illness.
I am stocking up on my water. I buy many bottles and figure i will keep bottles empty at work and get to a fill station on campus as often as possible.
He only was excited to tell me i was getting my 2nd shingle shot and in June of 2026 I get my live vaccine, the MMR. Crazy. I asked him how long i will take Acyclovir and he said 6 months after the MMR vaccine.
I wanted to be a good patient. My water is it. I must do what i had done and drink up, so my next blood test will have me back in the 80's.
Check out "cancer decoded" on utube. The Dr who bought the LA Times made his fortune with medicine. I watched it to understand more about my sister. I had Lynparza pills in my breast cancer treatment with a side effect that may lead to MDS. All the stars in my body aligned and I got MDS. My sister agreed to infusions of Avastin.
Lynparza helps repair DNA in cancer cells. Avastin blocks the formation of blood vessels that feed tumors. I thank God she is talking the one she took.
We have choices in our treatment. I love the cancer decoded series; May Clinic, Md Anderson and City of Hope and more who show me treatments are hearing and being developed that will give more cancer patients long life.