I may have epilepsy even though an EEG did not show it. I have fully aware bilateral facial spasms for 6 mos., preceded by nausea 1-3x day for 2-5 mins. Sometimes my tongue protrudes at the end, then retracts quickly. My nausea stops shortly after these episodes.
I am told that since it starts on left side of face and goes to right down from my eyes to lips and chin, with muscle clenching, that I would typically be unconscious but I am always totally aware and video these events often.
I am waiting to see an epilepsy specialist but has anyone else experienced something similar? Other possibility is Meige syndrome. I an a 66 year old female. The neurologists I’ve seen so far are stumped. Brain MRI and MRA are normal. Thanks.