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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 3 8:01am | Replies (343)Comment receiving replies
I'm interested in becoming a CAR-T therapy patient. I asked my doctor about immunotherapies and he was dismissive. He has prescribed acalabrutinib now. I don't know where to even start to find CAR-T therapy, let alone have any idea if it's even feasible for me. Can anyone offer any advice?
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@ksandusky86 It sounds like your current hematologist oncologist isn’t willing to discuss any potential alternative treatment options with you. It never hurts to get a 2nd opinion so that you know you’re getting the best care for your diagnosis whether it’s for traditional treatments or if you’re interested in CAR-T therapy.
When looking for information on CAR-T, make sure you contact a larger, research/teaching hospital that does these on a regular basis.
From personal experience I know Mayo has hematology and stem cell/CAR-T transplant departments second to none. If you’re interested in being seen at a Mayo Clinic location, here is a link to get you started for requesting an appointment. http://mayocl.in/1mtmR63
Campuses are in Rochester, MN Phoenix, AZ or Jacksonville, FL
The link will take you to Mayo’s home page where you can initiate the request. You don’t need a physicians referral but it can be helpful.
Has the Acalabrutinib been helpful in keeping your CLL under control?