← Return to Stem Cell Transplant Decision & Success

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Profile picture for janetlen @janetlen

Thank you for responding @loribmt, @katgob , and @alive I have a much better understanding of what I am facing. Thanks Lori for the lists. I am impressed 10 and 6 yr longevity. From the research I have done, getting past 5 yrs means the likelihood of reocurrence is rare. Kat you are past the 1yr mark which is another significant milestone. You all prove the fact the younger you are, the better chances for success with the SCT. My Dr gives me a 50% chance of survival and a 50% chance of the MDS coming back. I hope to beat those odds. My odds 2 yrs ago were not much better. I don't know yet what type of port or chemo I will have. I have pre-transplant testing next Monday and Tuesday. Most of the testing was done in 2024 when anemia was affecting me. I have to do it now to make sure chemo has not changed things.

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Replies to "Thank you for responding @loribmt, @katgob , and @alive I have a much better understanding of..."

@janetlen. The next weeks will be busy for you as you get all your ducks in a row 🐥 You’ll most likely get educational literature…meaning you’ll learn an entirely new vocabulary and toss around words you’ve ever heard before. LOL. Those of us who have been through it are well versed in BMT-speak, so if you have any questions or concerns we can answer for you don’t hesitate.

Another encouraging tidbit for you that I learned from my transplant doctor. Besides the milestone marker of 5 years with no relapse, another pivotal moment is getting past the 22 month mark with no recurrence. Once you reach that point, statistically the odds of a relapse drop dramatically.

Good luck this week with the pre-testing!