Where are all the people on Active Surveillance (AS)?

And you ended up doing RALP, right?

I was on active surveillance for seven years and two years ago my cancer progressed from Gleason 6 to Gleason 7 I decided to take action before it progress more . My prostate was removed two years ago and so far so good.. It is a personal decision whether active surveillance on a different treatment good luck my friend..

I was on AS for five years. Had a biopsy twice and annual scans. My urologist assured me that things were stable. Then they weren't.
Scans once a year are sometimes not enough. My cancer progressed from one year to the next to the point where a prostatectomy become somewhat of an emergency. Unfortunately that all happened when my doctor had a scheduled family vacation and an already backed up patient load, so a couple of months went by before surgery was scheduled. And then the customary three month time span after the procedure before checking my PSA allowed the cancer that had metastasized to get a foot hold.
After having completed chemo, ADT and radiation therapies over these past two years I'm stable at the moment but it's a waiting game now to see when it comes back.
My biggest mistake during the period I was under AS was that I was somewhat apathetic about the disease and treatment options. I let my doctor make all of the decisions. I trusted that everything would just be fine.
I should have started my research early on when the disease was first detected and I should have sought out second and third opinions.
Would things have been different had I done more research? It's hard to say but at least I would have been more in charge of the process and perhaps taken earlier steps toward treatment.

@jsteve at some point we all have to rely on the expertise and knowledge of our providers to make the best recommendations for us. Don’t kick yourself for not getting multiple opinions. I agree with you, though, that AS may give us a false sense of security and allows denial of the seriousness of the diagnosis to get a foothold. Hopefully your recent treatments, in spite of disease progression will have a favorable outcome and you will have a long remission or other avenues for additional treatment if/when cancer recurs.

@handera, hope all is well. I came across this Greek Chef who has a cooking show on PBS. Her recipes seem very much in line with a prostate healthy approach to food. Here is a link… https://www.dianekochilas.com/wprm

The show is “My Greek Table”. A number of episodes focus on health and longevity through food.

@ezupcic

Thank you!

I looked over her website….quite impressive…Diane is from the Blue Zone Greek island of Ikaria and many of her Greek/ Mediterranean recipes look amazing.

We’ll have to give some of her recipes try!
https://www.island-ikaria.com/about-ikaria/Ikaria-BlueZone

@ezupcic
I did a 404 page not found. Maybe it will come back tomorrow.

I removed /wprm and I can get to the site.

@jeffmarc

Same issue… try here:
https://www.dianekochilas.com/greek-recipes/special-diets/
….then select “Mediterranean Diet”…

@handera

Beautiful recipes !!!🥰

Was eating food like this my whole life but it seems that only plant based diet (vegan) is truly helpful with PC.

Our urologist confirmed that at our first post-op appointment so we will stick with that as much as possible. Luckily many of Mediterranean recipes ARE vegan and the rest becomes vegan if one removes cheese and chicken 😉👍 !