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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 1 day ago | Replies (2038)Comment receiving replies
Hi I was diagnosed with stage4 pancreatic cancer. I haven’t started treatment yet. I’m looking at trials but the one I was interested in it’s really hard to get an appointment in a timely matter. So I may have to just start on the standard folfirinox. Getting educated on this set me back days and I did delay things more by not canceling our 5 day vacation. I have an appointment to get my port installed. Worried about quality of life on Folfirinox My oncologist say I can keep working out , keep hunting and even have 2 beers a couple times a week. I’m lost right now
Replies to "Hi I was diagnosed with stage4 pancreatic cancer. I haven’t started treatment yet. I’m looking at..."
Can't speak for your Folfirinox treatment or dosages but for my 90 lb wife (was 125) it has been very difficult to tolerate, She is sick for days afterward. This could be the stage 4 cancer advancing, the Folfirinox, or both. Each patient tolerates this differently. Her body revolted after treatment one, then each treatment became easier to tolerate but #11 has been very difficult.
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@jim1234
Where is your cancer located (head or tail)? Do you know what your mutations are? What is your CA19-9 at? Are you at a center of pancreatic excellence where they focus on pancreatic cancer? You need to start here answering these questions. Alcohol and pancreatic cancer don't mix so sounds like you need a second opinion. I'm 68 now and started out symptoms at age 64 with Kaiser telling my symptoms to my primary who didn't have a clue. I changed insurance at 65 and was properly dx 3 months later with stage 2. I'm stage 4 now as I have an aggressive type; others do not and are living for years, though many must FIGHT it by being your own advocate, knowledgeable and taking care of yourself. At one point my cancer antigen, CA19-9, was at almost 14,000 and after chemo (gem/abraxane) it's at 150. You sound young and healthy before your diagnosis so you must act quickly to have a winning chance, Best wishes and pray and have a good support of friends and family and have a good attitude!