← Return to Starting Proton Treatments for Prostate Cancer: Any experiences?

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@stevesien Thanks for this encouraging post. I am currently on hormone therapy (Orgovyx) and scheduled for early November to start Proton Therapy. I am 71 and been through years of active surveillance but as my PSA began to rise, we began the scans and Biopsy trail. With a Gleason 3+4 last year we made the decision to proceed with TULSA PRO, which at the time seemed to be the best choice for me. It was very disappointing after paying over $30,000 cash and expecting better results. My PSA dropped to 2.50 a couple of months after the procedure but continued to rise to 4.6 at month 10. More scans and another biopsy revealed an increased Gleason 4+5 and the cancer had spread quite a bit during the first year. Obviously TULSA PRO did not work at all for me. I was told that "maybe it was a bad TULSA Pro kit and maybe we should go in and try it again at a discounted rate"! I was told they would call me to come back in and get another MRI so they could take another look. They never called and I really had no further interest. So, my team and I have agreed to the Proton Therapy with hormone treatments and very optimistic that this is the right direction.

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Replies to "@stevesien Thanks for this encouraging post. I am currently on hormone therapy (Orgovyx) and scheduled for..."

@dderiso where did you have TULSA PRO? I am seriously considering it

@dderiso I opted for radiation but didn't do my homework and relied on the RO I went to. I ended up with 28 sessions of IMRT Photon radiation. 8 months later I have frequent urination/stinging and 3+ bowel movements a day. I should have gotten the proton as it is even more accurate than the supposed IMRT. I opted for no hormone treatment and my PSA at treatment time was 22. My last test was 4.4 which the RO I saw last said was excellent in this short period of time. It sounds like you picked the right treatment but why did you do hormone's for such a low PSA ? That drug is for advanced prostate cancer. A PSA of under 5 I don't think is advanced cancer. As long as the cancer is localized to the prostate the radiation should work 100% especially proton from what I have read. Anyway, good luck.