What’s up with these toe infections?

Posted by Suz @db72, Oct 14 1:30pm

Hello, Does anyone else with idiopathic axonal Polyneuropathy (or any other kind of neuropathy) have this problem?

In the past year I’ve had 2, now maybe a third toe infections. The first one was from an ingrown toenail but the one now seems to be on the toe - knuckle. Since my feet are mostly numb I didn’t feel it until I saw it and had to go to urgent care for an antibiotic. I’ll see the podiatrist again next week.

I never go barefoot and only wear comfortable open toed sandals. I shower daily keep and my feet clean and moisturized. And per my neurologists instructions, I check my feet daily for injuries so I have no idea why this is happening. It’s kinda scary for the obvious reason of getting a severe infection without knowing it.

Anyone else have this problem or suggestions?

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rivermaya34 | @rivermaya34 | Oct 16 3:07pm

@db72 Yes, I have had several toe infections also (one currently, too). They are not fun. You are doing the right thing by checking your feet for any blemishes, etc. I have to do the same bc of all my neuropathies. I hope you can get some relief, friend! Good luck to you!

Suz | @db72 | Oct 17 10:50am

In reply to @dlydailyhope "@db72 Thank you for the quiz. I took it and the result is ‘very likely’ ME/CFS...." + (show)

@dlydailyhope you’re very welcome!
Unfortunately, you are so right about the lack of understanding and coordination among doctors when it comes to complex conditions like ME/CFS.

I was first diagnosed by my regular GP only by chance in 1986. I remember her telling me that she never would have known except that her brother also had it. At the time there was a local epidemic of what they called
“ The Yuppie Flu” that made national news. She said she believed I had it.

I never recovered and when I moved away I carried the diagnosis with me to each new doctor. I’ve had had dozens of doctors and specialists since then and haven’t found any that know much about ME/CFS. Some were flat out dismissive, others sympathetic. But the good news is, most doctors now at least acknowledge it now and some are even informed enough to call it Myalgic Encephalomyelitis/CFS. It’s a start anyway . Unless you can find someone who specializes in ME. (which is doubtful) you’ll have to find someone who knows enough to at least diagnose. Osteopaths and Functional Medicine drs are more likely to understand ME better. You might try asking around locally-or phoning doctors offices to ask.

But here’s the thing. there’s no test or treatment for ME/CFS so even a ME/CFS specialist can only treat symptoms and comorbid conditions. And for that any doctor will do. But it’s still good to have a firm diagnosis in your chart and at least an understanding doctor. Especially if you need to try to apply for disability.

Best wishes to you! ❤️