Journavx (suzetrigine) new non-opioid medication for acute pain

@heisenberg34 It's called the "2025 Patient Savings Program - for patients with commercial or government-sponsored insurance who do not have coverage for Journavx".

Good luck!!! Had a long chat with my neurologist, who is still not willing to prescribe this for me, due to the unknown effects of long term use. So my PCP is the one prescribing it.

@julbpat It sure is random. I spoke with my pharmacist and was told that the coupon was not good for my script. Oh well.

@julbpat I just picked up my million dollar script for Journavx. I intend to start taking it tomorrow. Time will tell if it helps. At this point in time I would be willing to trade almost any side effects for some decent pain relief.

@heisenberg34 Publix pharmacy wouldn’t honor it because they never got paid back by Journavx. They suggested CVS, and they did accept it.

I had a prescription for a 30 day supply with refills. I faithfully took this to cope with my idiopathic neuropathy for the initial 30 days and refilled the prescription. I took the medicine for approximately 50 days straight. I did not think it was truly working for me and stopped. Two weeks later I was in a lot of pain in my feet and legs. I decided it was indeed working to alleviate (not eliminate) my pain. I took the few remaining pills and became convinced it was effective. I attempted to refill the prescription and I'm now caught in the "prior authorization required dance" in order to obtain a refill. Its frustrating and baffling. The prior authorization hurdle was overcome to fill it initially and obtain the 1st refill. I'm now in limbo as I await further word. I know it was effective in diminishing the pain level. I was at a 3-5 range with the medication; without it is a 5-7.

@cek diminishing is a good description! I’m traveling today, walking miles in the ATL airport carrying a too-heavy bag, and dying from pain. But I can tell I’m in less pain than I would be without the Journavx, if that makes sense. I don’t feel overly sensitive to bumps and pressure like I usually would.

@julbpat Safe travels. The last time I flew from Boston to LA I requested a wheelchair. Don’t hesitate to do so. It made all the difference for me. I use a cane everywhere except in my house.

@julbpat would like to talk to you! Why don’t you get a wheelchair! I live in Atl too and always take a wheelchair. Too much walking in thathugeairport!!

@heisenberg34
What were you taking before Journavx? Don’t you have a reaction if you just stop taking the other drugs ie pregabalin etc. Let us know how it’s all working!!

For those of you interested in my journey with Journavx, here's the most recent scoop:
I'm on day three. Took the initial 100 mg dose, then the 50 mg dose at 12 hour intervals. So far I am not noticing any significant relief in my feet(pain, burning...), buttocks, or lower back. If there is any impact, it is not sufficient to notice. I will keep it up for another couple of days and will let you all know how it goes. I'll likely chalk this up to another promising thing that failed. Have a blessed day!