Terrible that you are suffering with these side effects. You are wise to consider stopping the drugs so as to halt further side effects. I'd be considering the same thing. Have you considered getting a second opinion? Maybe virtually from NJH? That way they can look at your overall health, age, CT scans, sputum cultures, colony counts, type of NTM, blood work etc and counsel you. Maybe they know of a drug trial that might be right for you. I don't know I am throwing out ideas in case they help you think it through. I'd also touch base with my PCP. I sure hope others will weigh on this important decision.