← Return to Has anyone had Paget's disease of the vulva?

Discussion
chaka67 avatar

Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Nov 12 7:05pm | Replies (166)

Comment receiving replies
Profile picture for foster14 @foster14

Yes I have had it for 6 years. Surgery, all went well then it returned a about 2 years ago. Since then it just won't stop growing...Had 3 more surgeries and the pagets is coming from behold the clitoris. The surgery is in November and my Dr wants to remove the clitoris and get it all. I'm considering this because I'm tired of being in pain all the time. And unfortunately I am also incontinent so the urine irritates it all the time. I'm trying to find an OAB medication to help with that but since I'm 71 some medications can cause memory loss and I don't need any help with memory loss. Has anyone had their clitoris removed and was it very painful?

Jump to this post


Replies to "Yes I have had it for 6 years. Surgery, all went well then it returned a..."

@foster14, I'm tagging a few members like @ftwtxgirl @chaka67 @kanderstag who may be able to share more about having to have surgery due to tumor growth around the clitoris.

On the topic of overactive bladder (OAB), I wonder if you've even heard of bladder training. Read more here:
- Control frequent urges with bladder training https://connect.mayoclinic.org/blog/take-charge-healthy-aging/newsfeed-post/control-of-frequent-urges-with-bladder-training/

You sure have been through a lot of surgeries.