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Good question! At the beginning of my journey I found the forum to be extremely helpful. So when things settled down a little I tried to pay back by commenting when I thought I had something relevant to contribute.
In October of last year I commented on a post about my relevant experience, firmly in the "this is what I did" category and the OP thanked me. But in March this year, out of nowhere, I got a lengthy diatribe about the error of my personal choices and my "disservice" to this community. At first I went all-in on my rebuttal but I saw the stupidity of that and disengaged. Search for that D word if you're very, very bored.
So, sadly this is my first - and likely last - comment since that ridiculous experience. Now I dip in from time to time and read interesting posts but sadly I no longer contribute. I'm grateful for your question and the responses because, had I known about the rules and moderation, I may have gone that route. But I had other things to worry about - and still do.
So if anyone else experiences the "piling on" I insist you immediately must...
Just kidding. Peace.
Replies to "Good question! At the beginning of my journey I found the forum to be extremely helpful...."
Well, I searched lol and I can only say that that comment was completely out of place and uncalled for 😵💫😲 ! WHAT ???? One can only wonder in what kind of "unforgiving" family one lives 😰 and what intimate details one is sharing with all of the coworkers of all people 😕. We are all different and deal with stress in different ways and what we share or not is matter of privacy first and foremost.
I am flabbergasted and I can only say that you should be back and posting , by all means !
You have extensive experience with radiation treatments and your voice is very valuable here. 💗
I am sad that some other members stopped posting too 😔 ...
@rtmcknight I think we’ve all seen more than a a bit of that here and are frustrated by similar experiences. A support group is there to lend an ear, share common experiences and answer questions but not to question or challenge any individual’s personal treatment choices or contradict the advice they have received from their own medical providers.
The fact that the group is affiliated with Mayo Clinic may give it an image of medical authority that separates it from other message boards, but as Mayo Clinic providers are not commenting or censoring some of the posts, that credibility may not always be factual.
@rtmcknight @surftohealth88 @peterj116 if you see something out of line and contrary to the Community Guidelines, I encourage you to report so that the moderating team can take action.
Mayo Clinic Connect should be a safe place where members feel comfortable sharing their experiences and to learn with peers. Abusive behavior is not allowed and such posts will be removed.
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Please reconsider your decision to stop commenting. I find your earlier posts to be appropriate and helpful. If you can ignore the diatribe your received in March and others like it, we will all benefit from your participation.