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Pancreatic Disorders Group: Introduce yourself and connect with others
Pancreatic Disorders | Last Active: 15 hours ago | Replies (115)Comment receiving replies
Hi All,
I have had and still have a very long and complex pancreas history. Where am I today?
I am still in recovery from a total pancreatotomy that was performed March 13 of this year. It was a long and complicated surgery that resulted in hospital stays from March 13-June24 of this year. I just was tested today for gastroparesis as my stomach will not empty. I would love to hear from anyone that is being treated for this and what worked successfully for them.
I am TD1 using Libra 3 glucose monitor and the ILet glucose pump. My endro is beyond pleased with the fact that I stay in range 98-100 percent of the time. I have lost much weight and hope to get my stomach issue fixed very soon.
I can share info on:
IPMNs
Pseudocyst
pancreatitis
Acute necrotizing pancreatitis
removal of pancreas, spleen, gallbladder, part of stomach and small intestine
ERCPs
related bowel issues
EPI w/Creon both before and after surgery
Great to get this group together.
Thank you,
Toni
Replies to "Hi All, I have had and still have a very long and complex pancreas history. Where..."
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Hello @tls, and welcome to this new support group for those of us who have pancreatic disorders. You certainly have had an extensive surgery this year. You mentioned that you are now dealing with gastroparesis.
While I've not had pancreatic surgery, I have had three surgeries of the upper digestive tract, including gall bladder removal during one of the surgeries, and I certainly understand what it means to have slow motility.
As your surgery was extensive, I would encourage you also to join a discussion group called,
How Do I Eat After Digestive Tract Surgery? Here is the link to that group:
https://connect.mayoclinic.org/discussion/how-do-i-eat-after-digestive-tract-surgery/
What are the most difficult symptoms that you deal with post-surgery?