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What’s up with these toe infections?
Neuropathy | Last Active: Oct 17 10:50am | Replies (12)Comment receiving replies
How did you get diagnosed for ME/CFS? I have a lot of those symptoms and had a really bad case of EBV/mononucleosis when I was 13. I then had it come back 6 months later. Today, I have idiopathic small fiber neuropathy and many spine/spinal cord/nerve root/nerve issues.
How are you currently being treated for your large fiber neuropathy?
Did you have Covid infection and the shots? This affects the nervous system, too.
Replies to "@db72 How did you get diagnosed for ME/CFS? I have a lot of those symptoms and..."
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@dlydailyhope I was unusually fortunate to have been diagnosed within the first 6 months nearly 40 years ago. Back then it was called CFS then CFIDS and more recently ME/CFS. Since there’s no test available yet it’s still diagnosed by a process of elimination all other known causes along with a set of symptom criteria.
It’s not uncommon for people with ME/CFS to also have small or large fiber neuropathy.
My neurologist prescribed Gabapentin but I refused it because of side effects. But also because I have predominantly numbness and the heavy stocking/glove sensations with minimal pain. But I also take Low Dose Naltrexone for fibromyalgia and arthritis so the LDN may also be keeping neuro pain at bay.
Never had COVID but get all the Covid vaccine updates. My neuropathy predates Covid by decades.
Here’s a short quiz you can take from the Solve ME Intiative , they’ve been around since the 80’s and do excellent work.
Best wishes!
https://solvecfs.org/me-cfs-long-covid/do-i-have-mecfs-quiz/