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@blm1007blm1007 Hi, this is actually something my pulmonologist has wanted me to do for quite some time. I even had an intro appointment over the phone with NJH a few months ago, but have not moved forward with it due to insurance/financial reasons. Ideally, going to NJH would be the goal. It is also difficult for me to find time to take off to go given my graduate school program. So I am sort of just stuck in this in between stage for now :/ I have a tentative appointment to get a chest CT tomorrow but it depends if it gets authorized in time/if I can even find a way home to make it.
Replies to "@blm1007blm1007 Hi, this is actually something my pulmonologist has wanted me to do for quite some..."
Check out
https://www.letsbecleartoday.com/ to find an NTM BE center near you. Yes NJH is the gold standard, but perhaps it would be easier for you to go to one of the new approved centers throughout the US.
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@sdugan001 You are young I am 83 and I know how we think when we are young. Your pulmonologist is right and I am glad you do want to go NJH.
Think out of the box to find a way regarding finances, your graduate program and all that is needed to get to NJH. I wonder if NJH has a program that can help you since you are in the position you are in. They have many different types of donors, who knows ......there might be something there to help you. Just an idea.
This is your health and it is something that would be best to do now, as soon as possible per all you have told us. Things we often put off in the early years come back to bite us twice as hard later on. Another thought, I don't know how to do this and I know it is not something totally comfortable to do .....however.....is there any way you can establish a go fund me on the financial end.
Would you be comfortable talking to those in charge and figure out how to handle the time away and how to adjust once you return to finish up the graduate work program.
Feel free to ask as many questions here on Mayo. All of us will will understand and try to help you.
You can start threads with your questions other than this one regarding Brinsupri that you found your way to.
Hope you don't mind all I have said but I, we, want you to do what is best for yourself not only in the short run but also the long run.
Barbara