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How do you use the Bololo?

MAC & Bronchiectasis | Last Active: 2 days ago | Replies (56)

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@pacathy: Did I read you right? Dr. Falkenham said that most cities don't have MAC in the cold water? That is great information! Does this mean that one can rinse fruits and vegetables in cold water and not be coating them with MAC? This could make life a lot easier. I am pretty comfortable with my equipment cleaning regime, but instead of having to boil water, if I could use cold tap water to rinse the equipment after the soak in Dawn and before putting it into the baby bottle sterilizer, that would cut down on significant work . I do not find boiling water to be an easy thing to do.
I live in a condo and have no way of upping the temperature of water into my unit. I bought a LifeStraw Home dispenser right away for drinking, thinking that would give me time to explore a point-of-use filter for the kitchen and for the shower. I'm still in the midst of that search, but I would probably shift my focus to the shower filter first if the cold water tap is ok.

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Replies to "@pacathy: Did I read you right? Dr. Falkenham said that most cities don't have MAC in..."

@bernadene24 I'll double check with him. I think he did, but maybe I didn't hear correctly. I though most issues were in the warm water. I emailed him. I just reviewed a couple papers he did and he didn't say that, so I may have misheard. I listened to a lot of info while I was getting diagnosed a couple years ago and definitely got the impression it was more the warm water in showers and taps that was biggest issue. I've been rinsing food in cold water since then. In the email, I specifically asked about rinsing food and equipment in cold (after equipment soaped in hot).

@bernadene24 There is no need to rinse your equipment in boiled water before your sterilize. Just tap or Lifestraw water is fine - sterilizing takes care of any germs.

Also, the goal is to eliminate any NTM or biofilm on your equipment - It will not be truly sterile because our homes are not. Do not worry about being totally dedicated to making things sterile - just clean.
When you walk around in this world you are constantly exposed to organisms and your body takes care of most of them. The goal is to keep the truly nasty stuff out of your lungs. As @pacathy said, we need to take sensible steps and live our lives.

Keep in mind that with all "bugs" risk is a combination of time and density of exposure. So random particles in a roomful of air are low risk, whereas showering in a roomful of steam with a lot of NTM's in it is higher risk.
In 8 years of living with Bronchiectasis and asthma, I have camped and traveled with my equipment, soaking in hot soapy water, rinsing with filtered or spring water and boiling in distilled water, drying on a clean paper towel covered by another and storing in a zip log bag. I change the baggie every week or so to prevent accidental contamination. And I have been off antibiotics for 70 months and tested free of NTM and Pseudomonas again last month.

The longer I live with this, the more I feel simpler is better.
Also, I focus on good diet, sleep and aerobic exercise to help stay healthy.