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PMR and Flu Vaccine

Polymyalgia Rheumatica (PMR) | Last Active: Oct 20 3:00pm | Replies (91)

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Profile picture for grandmap @grandmap

I was diagnosed with PMR last May. I have been on prednisone ever since, but have tapered down to 4 mg.
I got the flu shot last Thursday, 10/9, but was not advised that the flu shot for Seniors is 4Xs stronger than the normal flu shot. I had a flare of the PMR within 48 hours of receiving the flu vaccine. I could hardly walk, I was so stiff. Since then, I have had body aches all day long and pain in my joints, shoulder, hips, etc. Even my feet hurt! Unfortunately, once you get the shot, there is nothing to counteract the effects from it. I would advise anyone to proceed with caution. It is an individual choice, but please be informed of possible consequences.

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Replies to "I was diagnosed with PMR last May. I have been on prednisone ever since, but have..."

@grandmap

Thank you for sharing your story. I am in a PMR remission after two years and have been off of prednisone for one year & five months. Last year for the first time ever, I did not take a flu vaccine. This year I am considering getting the regular dose flu vaccine with possibility of two separate injections a few weeks apart.

@grandmap , really feel your pain, literally! I’ve had a similar experience that I think triggered the PMR to begin with. Last year I got the regular flu vaccine, though they strongly suggest the senior dose! I refused. Somehow the medical community is not getting this information about some of us who cannot tolerate the vaccine, actually I think it’s the adjuvants used. The more data, the more they know but meanwhile we’re left to struggle. So frustrating, I’m not an anti vax person but am feeling reluctant. My rheumatologist wants me to take low dose prednisone for a couple of days before and after my vaccinations.