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@scoop My situation is a little tricky in that my pulmonologist is in Indianapolis, but I am in Chicago for pharmacy school. Therefore, it is not as easy for me to get a sputum culture done but I usually always have “emergency” antibiotics on hand in case of infection and I take azithromycin 3x a week for prevention purposes. I do know that antibiotics can cause an upset stomach, and try to take all the necessary precautions.
I am feeling like giving up and very discouraged as my condition only worsens and I am only 23. I fear what the rest of my life will look like. It is nice to hear about your positive experience and makes me a little more hopeful. Thank you and @pacathy for getting back to me. It is nice to talk to others dealing with this, I have felt so alone.
Replies to "@scoop My situation is a little tricky in that my pulmonologist is in Indianapolis, but I..."
@sdugan001 Have you ever been and is it possible for you to go to National Jewish Hospital in Denver, Colorado......or the Center @scoop has mentioned. I know a lot depends upon insurance, finances and time but it might be very beneficial for you if you can. Are you familiar with National Jewish Hospital? If you have time it might help to research it to understand why I am mentioning it and why I, myself, immediately took myself up there when I realized I needed their help vs the local pulmonologist who wasn't fully knowledgeable of all possible problems that come along with Bronchiectasis and what to have me start doing for myself to help myself.
We want for you to keep trying and finding your way to feeling better and getting the best help you can. We understand how you feel....this isn't easy and it is so much work.
Hope you have been having a better day of it today.
Barbara
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@sdugan001 Thanks for explaining your circumstances. How difficult being in school, especially, pharmacy school, feeling crappy and with a chronic illness. Would it be possible to find local care so that someone could look and listen to you? Virtual care for bronchiectasis, especially during an exacerbation does not cut it. You are too young to be feeling so poorly.
There are 33 Bronchiectasis/NTM centers around the US, and there's one in Chicago, which is at Northwestern. Here's the info:
Northwestern Medicine
676 N Saint Clair St
Arkes Pavillion
Chicago, IL 60611
Phone: (312) 695-1800
Visit Website
Northwestern Medicine provides experienced, multidisciplinary care for bronchiectasis involving specialists from pulmonology, infectious diseases, allergy-immunology, rheumatology, and surgical specialties including otolaryngology and thoracic surgery / lung transplant. We oversee active research programs including clinical trials and translational research. Respiratory therapists who provide treatments such as nebulized medications and inhaled antibiotics are integrated into our care. Genetic testing is available when indicated.
Center Director(s)
Marc Sala, MD
Provider(s)
Manu Jain, MD
Michelle Prickett, MD
Michael Angarone, DO