@virginiald Surely your doctor can suggest a Pet scan,this shows everything that is going on in the body. It must be very frustrating to feel that you are not being heard . Maybe try new primary care doctor? Don't give up and listen to your body.

@virginiald hello,thanks for the info. Did you have radiotherapy and chemo. I’m being pushed towards both these treatments even though Primary cannot be located. They have decided best to start radiotherapy on groin reduction of lymph growing nodules immediately rather than to keep pursuing where the primary cancer might be originating from. Anal and rectal anoscopy ok. Next is cone biopsy and colposcopy.
If you received radiotherapy can u please tell me if it was painful. I have extremely sensitive skin and dislike the idea of both chemo and radiotherapy. I’m actually wondering if it’s better to let the cancer takes its course. I don’t think I will,be strong enough to tolerate the skin bleeding,🩸 breaking, and ulcerating.