← Return to Pancreatic Disorders Group: Introduce yourself and connect with others

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Profile picture for Lisa Lucier, Moderator @lisalucier

I'm tagging @yvonnecappe @shezza51 @kristiefisher @sdave @tls @crystallynn1976 @howboy @irr4et @dianehrdr @mercellort @normfairfield @crickard70 @korazon99 @nonnie9153 @tra418 @sarah60 @ladyaceintx1 @tslayden @cherawgirl @rozy288 @geegeebabe @ericawiersfischer @gravity3 @1realjeannie @jacquie415 @moodysgoose @sb4ca @bebold @speedbird @harper7745 @roseb39 @araman @chrioli @judypville @fpc3 @tigreyes2004 @thefam2016 @jkarmazin @creondave @rashida @mjemjm @musicbart @cheyne @geri1 @watcl3355 @warrior09 @renocmh to get the new Pancreatic Disorders support group started.

You've all mentioned the pancreas or a pancreatic disorder previously that you have personally experienced or witnessed in someone you know, such as:

-Pancreatitis
-Pancreatic abscess
-Cystic fibrosis
-Pancreatic cyst or pseudocyst
-Pancreatic trauma
-Exocrine pancreatic insufficiency (EPI)
-Pancreas divisum
-Annular pancreas
-Pancreatic serous cystadenoma
-Intraductal papillary mucinous neoplasm (IPMN)
-Mucinous cystic neoplasms
-Solid pseudopapillary neoplasms
-Insulinoma
-Pancreatic intraepithelial neoplasia (PanIN)
-Pancreatic fluid collection or acute peripancreatic fluid collection(APFC)
-Walled-off pancreatic necrosis(WON)
-Hemosuccus pancreaticus

What symptoms are you or your loved one experiencing? If you or someone you know has a diagnosed pancreatic disorder, what treatments have you or they had? Do you have any input or suggestions for new members?

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Replies to "I'm tagging @yvonnecappe @shezza51 @kristiefisher @sdave @tls @crystallynn1976 @howboy @irr4et @dianehrdr @mercellort @normfairfield @crickard70 @korazon99 @nonnie9153..."

@lisalucier I was originally diagnosed with Exocrine pancreatic insufficiency (EPI) but free more testing it turned out to be Bile Acid Malabsorption due to gallbladder removal.

Hello @lisalucier

I've dealt with pancreatic cysts (known as IPMN) for almost 20 years now. I was extremely worried at first, but after so many years of follow-up MRIs without any significant changes in size or number of cysts, I'm finally able to relax.

I look forward to sharing and learning with this new group!

I have moderate EPI. I take Creon and it helps with digestion. I also was diagnosed with Chronic Pancreatitis by way of MRI and MRCP. I have a pancreatic cyst that they are checking every 2 years, and one calcification. I am asymptomatic for the Chronic Pancreatitis.