I was off all meds for two years when I developed skin GVHD. My doctor put me back on sirolimus and added Jakafi. It’s been 4 years and she is slowly weaning me off the immunosuppressives.

It’s good that your doctor is on top of things and addressing the issues quickly. You don’t want GVHD to go unaddressed and get out of hand. Hang in there! It will get better! I am over 9 years post SCT and going strong.