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@lizzymbee Hei do you have lung metss? I was diagnosed papillary thyroid cance BRAF V600 om march 2025. I am 65 years old. I hope you will share your nutrition, healty life style. Did you get immununotherapy, what kind? How about Lenvima? Thank you for your reply.

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Replies to "@lizzymbee Hei do you have lung metss? I was diagnosed papillary thyroid cance BRAF V600 om..."

Hello @meghansa65 !

Thank God my lungs are clear! Yes, I was on lenvima - which (I believe) turned the mass on my neck necrotic. Then I was on Ketruda which was very effective. The mass on my neck actually abscessed (as it was into my skin) - it's now much much smaller with scar tissue and may be operable soon. My tumor numbers went down, however, after about 5 months, I did have side effects from Keytruda, so I had to pause it. My side effects have now subsided and doc is trying to get me on a clinical trial of Ketruda that addresses Pembro side effects so that a patient can stay on it longer without interruption. Pembro really helped me.
Other than that, I do supplements, including curcumin daily. I also incorporate flax soil - (see Budwig plan). Walking is very important for my blood pressure and overall mood and strength/balance. I rest/sleep a lot and try to avoid stressful. Prayer of course is a lifeline - we must keep in a hopeful state of mind. I also try to get sunshine/outdoors daily even if it's only for 15 minutes or so. (Some old hospital used to have solariums you know.) Pretty much everything I eat is anti-cancer. I try to stay away from sugar as much as possible, although I'm not always perfect. I was doing a low carb/keto diet, but since side effects, have been incorporating sourdough bread lately (it's good for the gut). Also, did you know that eating cacao is good for you - it brings out stem cells from the bones. So I do take high (84%) dark chocolate every day. I have a wonderful oncologist and follow Dr. William Li on Youtube. He also has a great book out "Eat to beat Disease" . So much more to tell, but I've definitely been unabridged here, so I will say God go with you and may you be blessed my friend. 🙂

@meghansa65 my daughter (in her mid forties) was diagnosed with papillary thyroid cancer and had surgery about a month ago to remove her entire thyroid. She is doing well. She will need to be under the regular care of an endocrinologist.

The good news is, we have heard that thyroid cancer is one of the most treatable of cancers, and the prognosis is good. We know, and know of, others who have been living with this cancer for as long as twenty years or more, which gives us hope for our daughter.