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@jonesja Oh thank you so much for sharing all this , it gives me hope! Did you have a feeding tube?

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@lizzyj58 My journey was similar in many ways to Jonesja's. I had more traditional chemo and radiation. I did have a feeding tube (through which my husband managed all nutrition and medication). We never had any issues and I was grateful I had it thru treatment. Reawakening all the muscles to swallow was almost a year long progression from liquids, pureed food, to solids. Two years out I still have to be mindful, but can eat most things. Still have trouble with chili peppers and jalapeños: my mouth is on fire! I, too, lost 30 lbs post treatment. I've regained 7-10 lbs. in the last year so I just look svelte instead of malnutritioned. The cancer treatment worked and I, too, am active and healthy and happy with my new 'normal'!

@lizzyj58 I managed to stay off a feeding tube. I started losing some weight and I knew I needed to get calories in. I would eat a creamy peanut butter and jelly sandwich with Boost drink daily. It would take 45 minutes to an hour to get down. The peanut butter for protein and jelly to help slide it down. Maybe a banana if I could. I started to maintain weight at that point. I also eat alot of eggs anyway I could during that time. However, MANY folks go on a feeding tube and then wean off with no isssues. I did not want to go that route unless I had too. God speed.