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Where are all the people on Active Surveillance (AS)?

Prostate Cancer | Last Active: Jul 24 11:42am | Replies (61)

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Profile picture for brianjarvis @brianjarvis

@jonathanack That’s the personal call that the urologist/oncologist can’t make. I don’t know too many diseases/illnesses/injuries where the first choice is to amputate.
For me, the treatment decision was a relatively easy (but time-consuming) choice. One of the understandings I had with my doctors was that quality-of-life and successful treatment were equal priority for me. That set the basis for us working together and agreeing on a treatment plan. So, with success rates comparing surgery with radiation being statistically equivalent no matter what treatment chosen, it all came down to side-effects and quality-of-life.
So, I put together a spreadsheet and listed across all treatment options. Then I listed down all possible & possibilities (%) of side-effects from each type of treatment, and gave each one a score. The one with the lowest total “score” ranked highest. We then took that list, and narrowed it down based on the preventions available related to each individual type of treatment.
I then “scored” the quality of life priorities that came out of my personal introspection, and compared that final score result with the treatment options score result. The score that was closest matching was my 1st choice: Proton ranked 1st —> then IMRT —> then SBRT —> and last was surgery.

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Replies to "@jonathanack That’s the personal call that the urologist/oncologist can’t make. I don’t know too many diseases/illnesses/injuries..."

@brianjarvis
Indeed. My decision was very much like yours minus the spreadsheet. My oncologist/surgeon literally said: I am not sure what I would do in your situation. Surgery or SBRT (both had ADT as part of the treatment re: cribriform) and were "equipoise". Pretty straight forward. Dana Farber concluded a test this spring for Proton therapy to treat cribriform and the results were not as strong as SBRT. The options I was presented are both curative and SBRT provides a quicker recovery and return life.

Quality of life and curative... I agree with your perspective. There is a difference between life and living.