@deb913 Sometimes diagnosing gvhd can be more of a process of elimination. So I’m really glad that your doctors were able to distinguish the cause and get you back on the meds.
I know, I know!! It’s frustrating to be back on a handful of pills daily, especially when you’d been feeling so great! I often quip that with these BMTs we have to maintain a sense of humor, a sense of adventure and to be adaptable.
Because we sure have to learn to roll with the punches.

After my two episodes with gvhd, it’s been pretty clear sailing over the past 6+ years. I’ll have days when I feel like the energizer bunny…several in a row! And then I’ll have a day like today, when my motivation and energy are in the ‘plllffffbbt’ mode. 😂 What’s special is that our bodies are meant to heal! Sometimes they just need help. Wrestling your excitable immune system into compliance may take a little bit of coaxing with meds and time but eventually things should setting down. Like I said, I was on the tacro for 2.5 years. No harm done! Most people with solid organ transplants are on tacro or other anti-rejection meds for life. This isn’t a setback…your immune system is working! It just needs to back off from being an overachiever. ☺️

Curious to know if you have any signs of lupus anymore?