← Return to Starting Proton Treatments for Prostate Cancer: Any experiences?

Discussion
Comment receiving replies
Profile picture for 4rs @4rs

I’m 49; diagnosed 4 months ago. PSA at diagnosis was 118 w/ Gleason 9 - 8/12 biopsy cores positive. PSMA PET showed regional spread to pelvic lymph nodes and seminal lining - no distant sites seen in scan. I’ve spent the past few months making the rounds at different Centers of Excellence to learn as much as I can to ID best path forward. Consulted with Mayo, Memorial Sloan Kettering, MD Anderson. Landed on Orgovyx+Abiraterone (taken with Prednisone). Two of the centers also recommended proton therapy over standard (photon) due to proximity of lymph nodes to bowel. I’m going through the insurance process now to get proton therapy approved. I have a good commercial plan, however, the first request was denied. Second request involved a peer-to-peer and was also denied. My care team is presently working with a third party (Apollo) who specializes in proton medical appeals. They submitted a comparison plan last week and I’m waiting on a decision. If it gets denied again, I have one more level of appeal, to an outside board. I’m hopeful the treatment will be covered, but concerned it will not. Any advice? Have those of you who have undergone proton therapy been satisfied with the results? Did anyone achieve “remission?”

Jump to this post


Replies to "I’m 49; diagnosed 4 months ago. PSA at diagnosis was 118 w/ Gleason 9 - 8/12..."

@4rs Yes I have complete remission, 15 years now. My PSA has remained around .2
Had proton and 1.5 years of adt. I was 54 years old. I was T3ANoMo gleason 7 and 8. PSA 9.7
Mine had only got to the cap of the prostate. Proton was better I believe as there are less side effects. And was very effective. Though I was told the 6 months ADT prior to proton just about removed the tumors by itself. There is so much treatment these days, I think you'll do well. Good luck.

@4rs I am going through the same insurance approval process and have been denied twice so fay as well. Do you have an update? Thank you