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DiscussionBronchiectasis and staving off recurrent infections
MAC & Bronchiectasis | Last Active: Jun 24 9:20am | Replies (56)Comment receiving replies
Replies to "Hello @emport and Welcome to the community! I would like to introduce you to others that..."
sure thing, Katherine! 🙂 Have a nice night!
Thanks so much @jamienolson and @katemn. Would love to hear from @windwalker, @lindam272 and @decosmo!
My symptoms are bad when it's really cold and dry... or when it's really hot and humid. Heavy dryness and humidity are both big exacerbators. For management, I'm on nebulized budesonide and formoterol twice a day (or Dulera inhaler), Ipratropium Bromide/Albuterol as needed, Ventolin inhaler as needed.
I also do the Neti pot, which is always helpful. I think I need to do it twice a day every day, as opposed to when I think I need it. I have a flutter valve that I should use more often, as well as hypertonic saline (nebulized). Mucinex is a bit helpful but makes me so spacey.
Just started taking Vitamin A.
Any other recommendations? I start a new project in a week and I am so scared of getting sick. I suffer from physical and mental fatigue.
Thank you in advance!
<br><br><br><br><br>Hello! Yes, I used to suffer from all of those things. I started treatment <br>at the Mayo four yrs ago and now the only negative I am dealing with right now <br>is extreme fatigue. I will have good days where my energy level is decent, but <br>only for a short while. Some days are couch days.(I am 58 yrs old, so <br>sometimes I resent couch days) Still have shortness of breath. I have to <br>use oxygen at the gym and at night. I am not suffering physically in any way, so <br>that is a plus. On the upside, I did go dancing last Sat night. It was the first <br>time in yrs that I have been able to. I had a ball! I think my new meds and <br>going to the gym made that possible. I guess it depends on the severity of your <br>bronchiectasis on how much of a comeback you are able to make with good <br>treatment. It is a progressive disease, and it does not progress at the same <br>rate for everybody. I have just under 30% lung function and still enjoy life and <br>get around pretty good. I am told that a double lung transplant is in <br>my future, but until then, I will enjoy what I have now. I hope this <br>helps.<br> <br> <br> <br> <br><br>
@windwalker, Terri, love it .. LOVE IT .. and love you! What an attitude .. what a gal! With 30% lung function and going to the gym .. AND "On the upside, I did go dancing last Sat night" .. YOU are in inspiration to us all! If I DARE to start whining every again .. bring out the "wet noodle" whip .. I will deserve it! You go girl! So proud of you! Big Hugs! Katherine
<br><br><br><br><br>Hi there. Yeah, fatigue is my biggest enemy. Sometimes it is hell when the <br>spirit wants to and the body won't let you! Weather used to be a big factor on <br>my health. The cold would burn my lungs and make me cough, the change in <br>barometric pressure would always mess me up. Since I was put on a new <br>antibiotic, I am no longer that sensitive to weather or smells. I still do have <br>a hard time breathing in humidity though.<br> <br> <br><br>
<br><br><br><br><br>Awe, thanks Katherine. Agh.....sometimes it's fun to whine!!!<br> <br><br>
Thank you @windwalker!
Covid lock down had the positive effect for me that I did not pick up bacteria or viruses that triggered my bouts of bad bronchitis. In normal living I would have three terrible weeks every few months fixed with high pred and Augmentin forte. I am going to have my second shot soon and could then travel to see grand and great grand kids which would be wonderful. But I worry that I will get bad attacks again ????
@jamienolson, Jamie? Wonderful post .. thank you! Really liked how you put your information .. thank you for jumping in! Hugs! Katherine