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Seven years with Pseudomonas-Will this treatment work?
MAC & Bronchiectasis | Last Active: Oct 16, 2025 | Replies (19)Comment receiving replies
@beejenigma I was on inhaled tobi for 10 years until my infection became resistant to it. No kidney disease, and no tinnitus except when I am in a loud room with a loud band (which I am happy to avoid, tinnitus or no) or have my AirPods on for half a day. Yeah, tinnitus is annoying (and if you go behind the AI stuff, you will find university hospital control-group studies from seven or eight years ago that showed people got tinnitus whether or not they took tobi— it did not significantly increase the risk), but tobi worked while it worked, and my life was far worse before I took it.
Replies to "@beejenigma I was on inhaled tobi for 10 years until my infection became resistant to it...."
@spectrumcyclist
IV is what we are talking about. Not inhaled although in my case the inhaled Toby affected my urine output and I know someone else on this forum who got kidney damage from the inhaled. But again we are talking about the IV which is much more toxic.
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@spectrumcyclist IV TOBI not inhaled. I am on inhaled tobi also. NEVER allow a dr to give you IV tobi! Ever!