Hi. From Australia.
Similar story. Went for 4 years, night sweats, total fatique, not being able to get out of bed in the mornings, forever tired. From a fit ,healthy, highly active person, to a lazy do nothing individual. Saw several drs. For nose bleeding. Had quaterized veins in my nose three times, still bleeds, had two squamous lumps removed on top of my nose by Mohs surgery. First time told it was gone, but had not been totally marginalised and returned.
Developed, bowel and anus cancer. Held off from radiotherapy and chemo, on advice from oncologist at the time. Still fatigued. Still sweat nightly.
Moved my washing machine and dryer, and herniated 4 discs in my back (silly me) and developed a transient umbilical cord herniation. Great. Effectively lying on my back for over a year now. Just started walking again, pain meds useless. Sent home without care. I live alone.
A month ago, I came down with influenza A. Then COVID. how? From visiting occupational therapist, working out if they could approved for me to drive a motorised scooter to get the shops for food? First time COVID. obviously I’ve been previously immunised. Great. Now recovering. During the sciatica outbursts and the herniated disc, the hospital did a pelvic CT and pet scan.
Pet showed an enlarged lymph node In My groin.
My GP sent me to have it biopsied.
It has returned result of metastatic grade 4.
Thanks. Then Another Pet scan………….apart from groin…….apparently no other cancer? . Pet scans and CT apparently not 100% always.
This Im told by oncologist. Must have a primary cancer somewhere in my body. Can’t locate primary, anywhere so far. Blood count ok. So after several digital examinations, (nothing) I attended for a high resolution anoscopy.
Hurt a lot. bled a lot, still bleeding from my bowel and anus. Today I go for another test at anal rectal clinic. So sore I really don’t want another test. ……Tomorrow I get the results from the anoscopy.
I guess I’m saying one needs to really listen to their body. My night sweats, feeling feeble when walking, slightly losing my balance, bones aching etc.having difficulty going to the loo, all these issues started happening,
and I just kept working. Until …no more.
Apparently no one will operate on the groin lymph nodes until the primary cancer source can be found. In the meantime my next visits are to gynaecology for biopsy of the cervix, a cone biopsy and whatever else.
I’m tired of the drs visits, the hospital visits and sometimes I just want to be left alone. No drs. No visits. But Im Told groin lymph nodule has grown significantly and it’s an awful 😢 area to have cancer, as it will ultimately affect, veins and blood vessels down my left leg and elsewhere.
This is a long post for which I apologise. I joined the group because now I think I’m going to have to “Talk it out.”
And I hope my waiting experience will help others realise that waiting is not good. Listen to your body. Do not accept the first GP’s decision. Believe in yourself and follow up no matter how busy you are at work. Your life is important and keep whatever activities u enjoy for as long as possible. I’ve switched mine to Scrabble, board games, card games, things I can do from my bed on an IPAD to keep me company and keep my mind active. And I’ve started eating chocolate. Never a sweet eater. Now a craving for it at night.
Such is life, full of surprises.