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Replies to "We are quite similar it seems. We both have SAD (selective or specific antibody disorder). It..."
MAC & Bronchiectasis | Last Active: 7 hours ago | Replies (9)
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We are quite similar it seems. We both have SAD (selective or specific antibody disorder). It came out of left field. Siblings all healthy. Kids healthy. Extended family healthy. That's why I question it a bit. I started with IVIG but switched to subq due to possible side effects. It's way more convenient to be at home but frequency is greater than monthly. Between the Brinsupri, allegra and subq I am feeling quite well at the moment!
Here is a document listing the known causes of bronchiectasis, including immune def.
Replies to "We are quite similar it seems. We both have SAD (selective or specific antibody disorder). It..."
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@scoop that's interesting. Thanks for posting it. So many potential causes, but seems like very few people have heard of it.
I don't know how you do the sub q injections. I've been lucky and haven't had too many side effects over the years. The most frequent were headaches, fever and chills, but my doctor ordered fluids to be given prior to the infusions along with the Benadryl and Tylenol. It's helped a lot.
Continued success with your treatment!