My husband has several tumors in his skull. His 1st tumor between the illium and bowel was removed in 1995. 12/30/22, he was rediagnosed and NETS were discovered throughout his skull and body. He is Stage 4. He has been on Lanriotide since January 2023 every 28 days. We just returned from his 6 month checkup at Mayo. The CT showed everything stable. The last MRI of his brain was 1 1/2 years ago. There are two large tumors near the brain blood barrier but doctors agree that they are meningoimas and are not concerned. He will stay on the Lanriotide and be rechecked in 6 months. He lives a very normal life and we are thankful that there have been no increases in tumors or in size of tumors.