Connect
← Return to I have osteonecrosis of the jaw.
Discussion
I have osteonecrosis of the jaw.
Osteoporosis & Bone Health | Last Active: Dec 24, 2025 | Replies (34)Comment receiving replies
Oateonecrosis of the jaw is a big fear of mine. Can you tell what is involved? Pain, functional problems, treatment plans?
Replies to "Oateonecrosis of the jaw is a big fear of mine. Can you tell what is involved?..."
@laura1970
I first noticed the spot in my mouth, I felt it, I can’t really see it, as it is on the inside in the back. My regular Dentist sent me to a local oral surgeon, who was not sure. I then saw someone else who definitely diagnosed me and sent me to a teaching hospital in Jacksonville FL. I live about 2 hours away in a much smaller town. But I would go anywhere to stop the progression.
There was some discomfort in the area, but not a lot. For some reason, now, I have no discomfort. I’m just being checked every 6 months and doing the rinses.
And of course, I have stopped all Osteoporosis meds.
MLG
I'm in exactly your situation, as I began taking Evenity three months ago. I always assumed osteonecrosis of the jaw was possible only while the patient underwent their 12 months of treatment, and not afterwards.
Now, if I understand correctly, the osteonecrosis threat is permanent, persisting even after the person stops taking the drug?
That's concerning, to say the least.
Connect
@laura1970 Prolia has been known to cause osteonecrosis of the jaw as a side effect. If you want to avoid this, avoid Prolia!