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Brinsupri follow-up

MAC & Bronchiectasis | Last Active: 20 hours ago | Replies (429)

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Profile picture for lindabreathless @lindabreathless

I’ve been on Brinsupri for about 2.5 weeks. I started it on Sept. 25th. In my second week I am getting small patches of dry skin on my legs and on one dry patch the skin is peeling away. There are also very small hard bumps coming on my legs also. Is anyone else having any skin issues?

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Replies to "I’ve been on Brinsupri for about 2.5 weeks. I started it on Sept. 25th. In my..."

@lindabreathless I'm experiencing dry skin which seems to go with the season. Pulmonary discussed with me that if skin issues arise it's usually months into treatment. Nonetheless you might want to tell your doctor. I've read that hyperplasia of the skin can occur, which is thickening of the skin. Hard bumps sound like something different but it's good that you are paying attention to them as it might be related.

@lindabreathless
I have been on 25 mg Brinsupri daily for 5 weeks. I feel my coughing is less, my energy improved and less sputum though I didn’t produce a lot to begin with. I have BE and untreated MAC. My CT scan shows a reduction in nodules. No problems with medication but just started noticing the soles of my feet feel thicker on the balls of my feet. In some areas there are deepening fissures and peeling. Hands and rest of skin seem ok. This is definitely new as I usually have really soft feet. I don’t do professional pedicures (sanding of heels) and don’t wear a lot of sandals or go barefooted. So far, the foot issues are not painful or a problem. I am trying Amlactin or Urea lotion 2x/day to see if I can gently keep exfoliating. I am devoting extra attention to moisturizing all over. I would appreciate any other suggestions if anyone else is experiencing similar symptoms.