Connect
← Return to Has anyone had Granulomas on or around their stoma?
Discussion
Has anyone had Granulomas on or around their stoma?
Ostomy | Last Active: Oct 13 3:03pm | Replies (12)Comment receiving replies
@animallover25
Hi, I am wondering about the granulomas, I have heard of them but never thought that I might have them. Still don't know if I do. But I know I have MCS multiple chemical sensitivity.
I would like to know if you got a diagnosis for - CVID- Common Variable Immune Deficiency- I have never heard of it and wonder how it might be related to MCS multiple chemical sensitivity.
I struggle with all these auto immune deficiencies, I have just been diagnosed with it and he just called it auto immune deficiencies. Not a real cause just that my body was attacking itself.
I come here because I have a colostomy and I read about so much with it and then your post about other things that I had not even known about.
Thank you for sharing, I need to check into this also.
Replies to "@animallover25 Hi, I am wondering about the granulomas, I have heard of them but never thought..."
Connect
@klancee47
Hi, unfortunately, I can't speak of the MCS, as I don't have that. You will need to talk to an Rheumatologist about that or Immunologist about that connection.
Yes, I was diagnosed in late 2023 from an Immunologist with CVID. There are over 400 different types of different immune deficiencies/auto immune conditions. They do lots of tests and it takes awhile to get the diagnosis. With CVID- my antibodies aren't working properly, so they don't function well. I do infusions each week to get new antibodies from others. It has helped to reduce the number of infections I get each year. Did you see a Rheumatologist for your auto immune disorder- MCS? What are they doing about it? What are your symptoms with MCS? Your welcome!