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Has anyone had Granulomas on or around their stoma?

Posted by fastrategizer @fastrategizer, Jul 16, 2021

Has anyone had granulomas? I believe that I have a few on/around my stoma. I see the Dr next week and will discuss then, but I was wondering if anyone had tips on how to clean/handle them.

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2SelfBTru | @klancee47 | Oct 12, 2025
In reply to @animallover25 "Yes, I have 4 of them. 2 of them are on my upper thighs and I..." + (show)
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Yes, I have 4 of them. 2 of them are on my upper thighs and I can feel them when I touch on them. The other 2 are: spleen and my liver. I had a CT scan and they said they were benign. I would recommend getting a CT scan for it. The Pulmonologist is the Dr you need to see for it. Another Dr. you could see is a Rheumatologist, as granulomas can be connected to Auto Immune Diseases. I had a ultra sound done awhile back on the legs one and they said they were benign. Thank goodness! Does anyone here have an Immune Deficiency? I have CVID- Common Variable Immune Deficiency. My Immunologist says that some times my lung nodules can be associated with CVID and granulomas too. Just curious.... I don't think they typically do much with granulomas, unless they are causing pain. My Immunologist does want me to see a Genetics Dr. for the granuloma on my spleen.

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@animallover25
Hi, I am wondering about the granulomas, I have heard of them but never thought that I might have them. Still don't know if I do. But I know I have MCS multiple chemical sensitivity.
I would like to know if you got a diagnosis for - CVID- Common Variable Immune Deficiency- I have never heard of it and wonder how it might be related to MCS multiple chemical sensitivity.
I struggle with all these auto immune deficiencies, I have just been diagnosed with it and he just called it auto immune deficiencies. Not a real cause just that my body was attacking itself.
I come here because I have a colostomy and I read about so much with it and then your post about other things that I had not even known about.
Thank you for sharing, I need to check into this also.

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animallover25 | @animallover25 | Oct 13, 2025
In reply to @klancee47 "@animallover25 Hi, I am wondering about the granulomas, I have heard of them but never thought..." + (show)
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@animallover25
Hi, I am wondering about the granulomas, I have heard of them but never thought that I might have them. Still don't know if I do. But I know I have MCS multiple chemical sensitivity.
I would like to know if you got a diagnosis for - CVID- Common Variable Immune Deficiency- I have never heard of it and wonder how it might be related to MCS multiple chemical sensitivity.
I struggle with all these auto immune deficiencies, I have just been diagnosed with it and he just called it auto immune deficiencies. Not a real cause just that my body was attacking itself.
I come here because I have a colostomy and I read about so much with it and then your post about other things that I had not even known about.
Thank you for sharing, I need to check into this also.

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@klancee47

Hi, unfortunately, I can't speak of the MCS, as I don't have that. You will need to talk to an Rheumatologist about that or Immunologist about that connection.

Yes, I was diagnosed in late 2023 from an Immunologist with CVID. There are over 400 different types of different immune deficiencies/auto immune conditions. They do lots of tests and it takes awhile to get the diagnosis. With CVID- my antibodies aren't working properly, so they don't function well. I do infusions each week to get new antibodies from others. It has helped to reduce the number of infections I get each year. Did you see a Rheumatologist for your auto immune disorder- MCS? What are they doing about it? What are your symptoms with MCS? Your welcome!

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