@angiede2001, You and your husband have been through a difficult time of learning and decision making. My thoughts and prayers are for both of you. He is fortunate to have you with him. I know that this must have been a difficult decision. And that you are still coming to terms with it; and you probably will be for some time to come. I want you to know that we are still here anytime you need anything, or just want to chat. Please know that you are not alone.
I hope that you and he are able to find comfort in knowing that he was able to make this informed decision about his future healthcare.
Prayers wrapped in hugs are coming with this message,
Rosemary

Thank you...not what I want, but I will try to support him. Thanks for your prayers wrapped in hugs. You might as well be from my church 🙂

Hello @angiede2001 Nice to e-meet you, even if it is under such stressful times for you. I am Scott and while I have no experience with dialysis, I was the primary caregiver for my wife for 14+ years and helped her through some of the very difficult treatment decisions she made. I also helped her with communicating those to family, and often acting as her armor and buffer with those who disagreed with her decisions and felt the need to interfere with her decisions. My wife made many decisions where she chose what she viewed as 'quality time over quantity of time' in her treatment decisions. She and I discovered often these are some of the toughest decisions a patient makes and frequently difficult for some others to understand and accept. I applaud your positon of supporting your husband's difficult decision. Caregiving is touch day in and day out, but when we must add these gut-wrenching decisions it can become overwhelming. At least it frquently did for me.

I am also the Volunteer Mentor over on the Caregiver discussion group. I just wanted to say it is a welcoming and nonjudgmental group. We all love to share some of the caregiving hints and hacks we have each developed during our times as caregivers. Feel free to just check it out, read, and not even post if you don't feel up to it. I know you said you didn't feel ready, but just remember we will be there 🙂

Peace and strength.

I am ready now, coz he has made his decision to refuse treatment. Ate there support groups a person can attend?  I am scared to death of the future, and I just feel weird talking to people  about it.  Feels like I am thinking more of me than him.