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Moving on to radiation

Prostate Cancer | Last Active: Oct 14, 2025 | Replies (15)

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Profile picture for northoftheborder @northoftheborder

@suzdog No, I wasn't lucky. Like you, I was in the unfortunate minority whose side effects didn't fade after a few months, and I seem to have permanent radiation cystitis and radiation proctitis, confirmed with imaging.

After 3½ years, though, I've adjusted, and I am glad that the radiation reached any cancer cells that might have been hiding just outside the prostate, even if it means occasional discomfort now.

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Replies to "@suzdog No, I wasn't lucky. Like you, I was in the unfortunate minority whose side effects..."

@northoftheborder Oh. I just read your first comment where you said it was no big deal, you just lay there. I see now in another post I didn't read you mention your radiation proctitis. I was stupid and should have done my homework and found out that proton radiation would have probably saved me from these side effects.I listened to the RO I went to who didn't go over anything related to side effects and just had his receptionist hand me a 3 page handout that mentioned you might get some of these side effects buried in a bunch of other information. I knew I didn't want surgery and wear a diaper, and still don't, but it absolutely sucks I can't go anywhere for more than 2 hours without a bathroom close by. I belong to a car club and now I am one of those pesky old guys that have to stop on our rides all the time. Anyway, I have more time to go to be sure the treatment got all the cancer. Sure hope so.