I know people that have done it, Waited for their PSA to rise, and then found they had metastasis in many spots on their body. I know others that have done it and we were able to go a year or two before they had to go back on the drugs.
I had a 4+3 and have been on ADT for almost 9 years. I’m also on Nubeqa. I am 77. Had a metastasis zapped on my spine two years ago. I know that if I stop Nubeqa My PSA will rise almost immediately. I tried Just reducing the pills I was taking when I was on Zytiga Two years ago and my PSA Rose immediately.
You can try Stopping the drugs, but make sure to get monthly PSA tests because if it starts going up, you need to get right back on it.
One thing you could do is have him stop Eligard But stay on Nubeqa. I know a lot of people that have done that. Many of them in their late 70s and 80s. Nubeqa will work even with testosterone coming back. I tried it for eight months last year and stayed undetectable, but my Testosterone was rising too quick so I had to go back on ADT.
Talk to him and his doctor about it. Most of the side effects are due to Eligard, Going to just Nubeqa Eliminates almost all of the side effects that are happening. Nubeqa Can reduce the effective testosterone so that if it rises, it will not cause the cancer to come back right away.
@jeffmarc hi Jeff, thanks for the insight. One question it seems that you developed a metastasis in you spine while on ADT, is that correct?