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Help needed for Musician with EDS/hEDS/HSD

Bones, Joints & Muscles | Last Active: Oct 12 8:54pm | Replies (5)

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Profile picture for arlinevs @arlinevs

The only “most helpful” procedure I have found is PRP. Some orthopedics do it, but I went to a Musculoskeletal Doc who specializes in Stem Cell, PRP, Prolotherapy and Manipulation. Unfortunately, with age and the body’s natural decline, my personal experiences have been bleak. A healthy diet without dairy and most grains helps as well, but age is only a friend to wisdom and knowledge, in my experience. SUGAR is your worst enemy. Try to eat Organic. Autoimmune issues SUCK! There can be moments or brief spans of remission, but there is always a relapse. It seems that there is always a monster ready to jump out of the next door. Cherish the moments you get and as much as it hurts you, maybe pick up another hobby to fill the gaps. Try to find joy in the moments you get and be patient with yourself. At 52, my monsters are real jerks, but seeking ways to serve helps me. Seeing others happy, makes me happy. I wish there was a miracle repair, so many advertisements imply it’s possible, and good for those that do…but reality is the majority don’t. Cherish the memories and find ways to make new ones. Focus on what you CAN do. Blessings and good luck in your journey.

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Replies to "The only “most helpful” procedure I have found is PRP. Some orthopedics do it, but I..."

@arlinevs

Thank you so much for your reply. There are some real words of wisdom in here. You’re absolutely right when we serve others, it takes the focus off of ourselves, and that can provide relief from our personal problems.

I still have not gotten PRP yet, but I am in between jobs. When I get another one I plan on rolling the dice to see if it works. I have been injecting Cortisone into specific tendons in the wrists as a test, because previously I only had injections into joints. With the tendon injections, some gave relief allowing me to play music for up to two weeks, before the tendinitis/tynosynivitus symptoms came back, while some injections gave no relief. What my local doctors told me was if the corticosteroids gave some relief, then there’s a better chance that PRP will work in that location too, and I am excited to try PRP in that areas that had some relief when I get a new job. To your point, I decided I have control over my career as a software engineer and to just focus on this for now as far as the big picture.