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It would be beginning dialysis, He is a strange critter. He worried about the shunt being put in...like it is the mark of the end times. says maybe he should just go be with Jesus. Pretty well refuses to talk about it. He may come around if I leave him alone. Pretty sure he is scared to death and in denial...he can be mean when he is stressed, so yes stubborn and controlling also 🙂 I read that if you have comorbidities, it really doesn't prolong life anyway...he doesn't have a whole lot...pvcs and controlled high bp. pills that control his cholesterol...obesity. Course, he looks like death warmed over now..prob. the kidneys. I really feel like rt now, I just have to let him make the decision and support him, in whichever. If I push, he won't do it...period.
Replies to "It would be beginning dialysis, He is a strange critter. He worried about the shunt being..."
He is starting to talk about the different kinds, so he may come around.
Dear @lcamino, I would like to welcome you to Connect. Usually at this part of my welcome, I will say that we are here to share our experiences and to support others. But I really don't need to do that because, @lcamino, you are an example of the highest level sharing and compassion. Your experience, and your willingness to share it, are beyond words. I thank you. You have my deepest sympathy and my highest regards.
I invite you to become a regular member. I hope that we can be of support to you sometime if you need it.
Rosemary
I respect your dad and his decision!
Thank you! I do too. I think it was hardest on my Mom for obvious reasons.
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Well my story won't give you any answers but it might help you not feel alone, and realize other people do make similar decisions. My dad had been on dialysis for years (had PKD) and then got a kidney transplant (my brother was a living kidney donor) but several years after the transplant he got an infection which went to his brain. My dad's quality of life was not perfect but the damage to his brain might have been reversed if he had accepted treatment. However, to fight the infection he was going to have to follow treatment that would result in the transplanted kidney getting rejected which would result in dialysis again. My dad had ALWAYS said if he needed to go back on dialysis he would choose not to and that would be the end of his life and that is exactly what he did. He would have lived longer if he had gone back on dialysis but he was done fighting and was ready for heaven. It was difficult to accept but it was his wish. I realize this is a different situation because he had been on dialysis before so it was not a control issue or fear but more exhaustion of being sick. Maybe his doctor can talk to him? Best of luck!