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Profile picture for Helen, Volunteer Mentor @naturegirl5

@greatgrandma2025 At 80-years-old and with 9 great grandchildren I think I can understand why you are reluctant to do the chemo treatments. If you've read the comments here and in other Gynecological Cancer discussions you will see a range of responses and reactions to chemotherapy. Some people have few side effects and some people have more. Do you know the names of the chemo agents that are proposed by your doctors? If you do, then you might like to list the names of the chemo agents here as some of our members can then respond with their own experiences.

I did not have chemotherapy so I cannot provide my own experience.

I've had pelvic radiation therapy. I had 28 external beam treatments and 2 internal (brachytherapy) treatments. I had very few side effects with radiation therapy other than fatigue and occasional diarrhea. Again, do you know what your doctors are proposing for radiation therapy?

Quality of life is certainly very important. You are the best judge for what you consider your own quality of life. You mentioned that you've kept your diagnosis from your immediate family. Have you now told your children? Or your grandchildren? Perhaps they can helpful although ultimately it is your decision on how you would like to proceed.

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Replies to "@greatgrandma2025 At 80-years-old and with 9 great grandchildren I think I can understand why you are..."

@naturegirl5 Yes after surgery my husband and two sons know. I haven't told three of my granddaughters yet but they know I had surgery, They have teenagers and I don't think they are ready to hear it yet. My one great granddaughter had reacted to the fact that I didn't answer her text when I was getting a cast on my hand two months prior to my finding out about the cancer. She cried days after she knew I was ok. At that time I had a talk with her letting her know I'm old my greats have not experienced people my age and dying. That someday she will get a call and it's part of life. But she continues to text good morning and good night. Phone calls telling me her issues which I love a chance to have input. She is 17 and my great grandson is 19. They keep me going although if I get chemo it will be apparent when my hair falls out. My grand daughter makes up treatments for my hair to keep it healthy. They recommended Carboplatin and paxol 6 treatments and 5 weeks of radiation daily. My second opinion recommended lower dose and only carboplatin . Thank you for responding I appreciate any information I can get

@naturegirl5 I also had endometrial cancer with a hysterectomy, Stage 1 , did not penetrate the uterus, and was told never to worry about it again. No chemo, no radiation. Unfortunately to everyone's shock I had a metastasis of it 6.5 years later. The metastasis was attached to my outer colon and hip bone. I had a colon resection and a long course of heavy radiation. The radiation oncologist said it would either cure me or kill me but w/o it, there really wasn't much hope. Radiation was tough because there was a lot of cancer on my hip bone. That was in 2002. I am still alive and doing well. Chemo back then was not suggested because I was told that the chemo back then was not very effective. From the removal of my lymph nodes during surgery, over a decade later I developed lymphedema in my legs. Then in 2021 I developed bladder cancer and was informed it was caused by so much radiation. BTW, I also had breast cancer in 1998 so had radiation then (no chemo). I successfully completed chemo directly into my bladder for a year and am doing fine. Hallelujah! If I had to do it over again, I would choose the same path with no chemo. I understand it's very successful for many. I watched my sister who had Stage IV breast cancer with a year of chemo suffer tremendously and died a year later. I decided that was not a path I wanted to take. Just a personal choice since my first diagnosis was at age 50 and I'm now 80.